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So, new update. I just spoke to vetinary nurse Rhiannon, and Misty is out of surgery and awake. They're coaxing him to nibble some food and things are looking reasonably good. He's staying there another night so they can keep a close eye on him, just to be on the safe side, but I'm to phone at 9am tomorrow and hopefully he'll be well enough to come home then. I'll let you know when he's home.

Thank you to everyone for your hugs, good wishes, thoughts and prayers, you've helped me get through two very stressful, worrying days. I'm blessed to have so many great, animal-loving friends, you're the best!

Date: 2012-08-07 04:28 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Butting in again...but I agree, if I don't have the whole family here that includes our cats, it just feels so empty. Glad he's home now. :D

love Deb.*late poster*

Date: 2012-08-09 07:12 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
LOL! YES! That icon describes me perfectly...especially when it comes to housework. lol! I just put Alex's sheets into the washing machine. I am so behind in cleaning too and I hurt so much, it is really hard to stay motiviated. Then again standing is easier than trying to sit here and type. I hate that! I want to be lazy and play on my computer. lol! I am standing up to type right now. I am afraid to take pain pills too often because of the rash thing. I took one last night, but it has worn off. Oh well. Whine complain...

Date: 2012-08-15 05:44 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Old post again, by now I expect Misty is well, in fact I may have read where you said he was much better. I hope you are better too by now. It would take a lot out of me too to care for a big heavy rabbit like that. Not sleeping makes it worse too. I don't know why I am still awake.

Thank you, yes the pain makes everything harder. I went looking for some blue jeans today, found nothing, and I was tired after looking at only one shop. :P I came home with a pair of flip-flop type shoes, really cute, but the one of them hurts my toes so I will have to take them back. Great! NOT.

I'm so behind on posts and I need to go to sleep. I see the acupunture guy tomorrow afternoon finally. Oh FUN! O_0
Edited Date: 2012-08-15 05:45 am (UTC)

Date: 2012-08-16 03:34 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Well life never turns out the way you expect it. Dr. Han is Chinese, but does not do acupunture. :O He kidded around a lot so I was not sure if he was telling me the truth or not. Michael explained it to me later. Obviously, Dr. Marshall either had him mixed up with another doctor or just though he might know of some help for me that didn't involve chemicals. lol! Dr. Han is hysterical! I like him and I did not have to get stuck with needles, instead, he gave me these Lidoderm patches to cut and stick to my vulva area. I will have to shave it first! Oh wonderful! I hate shaving my bikini line when I get ready for the beach and this is worse...I know...TMI! (Too Much Information!) I guess it is sort of like the lidicane gel I was using expect it is 2% strength and these are 5% strips that I keep on for 12 hours a day and then off for 12 hours a day. I just hope they don't cause irritation or I won't be able to use them. He also called in a prescription for some kind of cream for the pain. It is refrigerated and will come in the mail from Florida. Also, he gave me an antidepressant, not the kinds I read about being used for V, but maybe they all help the pain, it is just that I need a strong one since I am also depressed/Bipolar II and I need something for that so I will stop wanting to kill myself all the time. I am worried though because this one is an SSRI which is what sent me into "Serotonin storm" last year. Not this particular drug, but another serotonin medication, they are all simiular. This is another new one called Viibryd and it is not "suppose" to cause weight gain or kill my sex drive...like I need it right now anyway. My husband wouldn't mind though! I'm surprised he's not left me by now. All I know is he really loves me for some reason. :)

I'm going to start taking the Viibryd in the morning. Some people say it makes it hard for them to sleep at night. I need my sleep, I hope it doesn't do that. Also, I hope my face doesn't swell up again or I get an attack of the hives. The mood stabilizers seemed to be what was causing that the most, but who knows??? Here we go again! "To swell!"..."or not to swell!"..."that is the question!" YES! I'm a Loon!

Dr. Han has all kinds of ideas on how to get me out of pain which is what I want, but I also want to heal, and he shed no light on that subject. He was funny and fast talking and gave me lots of hope as far as pain relief goes, but at the same time, I never got to talk to him about healing from this condition. He probably doesn't know either. Oh, he is a Neurologist, not just a holisitic doctor. He can prescribe medications. He said if it got bad enough he could give me these shots in my V area...OUCH!...that would numb me up. I asked if it helped other women and he said yes. Told me I could come everyday, but I really would rather not have to do that unless it was a last resort.

THEY CUT ME AGAIN! LOL!

Continued on next post in reply to this same post.... :D

Date: 2012-08-17 11:04 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
Well I took one antidepressant pill yesterday morning and I was fine most of the day. I noticed my scalp was itching when I went to bed and it worried me a little. I woke-up and little bit of my lip was swollen, but has gone down now and my left cheek feels a little swollen maybe, but I know it was the antidepressant. I didn't take Oxycodone last night so it was not that + by itself it only causes welts and itching. Oh and I had some welts too this morning along with the swelling. So as my BAD joke from the other post goes... TO SWELL or NOT....well cross out the "not!" I give up!!! My body is so messed up or my brain! I don't think there is any hope left now. Everytime I get a little hope from somewhere it gets smashed. I pray, I try to hang on. So it this it? I guess I will just always have to suffer. I'm sorry, just delete this if you want to.

I wish they had a stone or crystal for contiuous alleric reactions. I wonder if there is a "real" Dr. House out there. He could be as mean to me as he wants to and I would take it if it would fix me.
:(

Oh well. I'm crazy.

sorry,

love you,
Deb.

Date: 2012-08-17 11:24 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
Hey girl!

You still awake? What time is it there?

Yes I have a stone or stones that said immune system and bloodstream somewhere. I'll find it now.

I need to calm myself down and stop crying right now. I'm getting a headache and I can't take anything for pain.

I'm so glad you are here. :) ...but if you are off to bed I understand.

Date: 2012-08-22 04:41 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Going through my really old posts right now. Can't sleep yet. Another crappy day!

I knew you went to sleep. I'm glad you did, it was awfully late. I was surprised when I realized you were posting.

Yes I have been using my Black Obsidian, but I have no idea if it works. Oh well, couldn't hurt. I have been holding and talking to lots of crystals, the bloodstone, rose quartz, moss agate, calcite, and amazonite the most. They are my buddies. Stones for "hope" calming, pain, inflamation, the amazonite is suppose to get rid of negitive energy which I need.

Did I tell you I tried the cream they sent me with pain killers + mood stablizer and an antidepressant in it and it still made my lip swell up and it is "topical!" The Gabipentin (mood stablizer) it numbs nerve endings, caused my bottom lip to swell up, not real horrible, but not good either, then by morning I had welts again and my upper lip swelled slightly though the bottom one was back to normal. I broke down crying again today. I only used "one" application of the cream yesterday and that was all it took for my body to go haywire! :( And even worse.... is the pain level was much better all day, but I can't go around with my lips swelling up all day long. I wish I could die sometimes!!! That's it! There is nothing else but crystals and maybe acupunture. I feel like I am being punished and I don't know what I did though I know it doesn't work that way. God doesn't punish while I'm on earth anyway, I don't think. Oh, surgery is left, but no quarantees that will solve the problem and it terrifies me! I don't want to be butchered down there...if it means cutting stuff off, not just removing overgrown nerves, then I guess I will just suffer until I die or it magically goes away, not likely. Sorry, I'm a pessimist. It is just that everytime I get any hope it is smashed! Another failure.

I am trying to find someone in town that knows how to perform this kind of acupunture, but I don't know if there is anyone. I called a group today who are checking into it and are suppose to call me back. I can't drives 2 hours to Atlanta or somewhere for weekly acupunture. I need to find someone here, but this place helps a lot of atheletes with arm, leg, back pain, etc., type problems. The woman I called had to write down the name of my condition because she had never heard of it of course! *rolls eyes* I need an old Chinaman that knows it all. lol! Maybe if they don't know this kind of acupuncture, they might know of someone else who does. I hope so. If not I will just have to keep looking. If all chemicals are out, there is nothing else. I've been told it works for V. for a lot of women.

Shutting up now! Sorry.

love Deb.

:(

Date: 2012-08-22 09:03 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
...and I am not sure even staying off all meds will make any difference. I think I am permanently allergic to most all pain relievers and anything that really effects my brain.

Thank you for the package. I will be looking for it. It took awhile last time for the first one to get here, but it has a long way to travel. lol! :)

Oh, I'm sorry you are so tired. Me too. Ate lunch with Michael and Alex at Alex's school today. He can't seem to eat lunch in the lunchroom, the noise of everyone talking and other sounds distracts him so he cannot eat. He has been bringing his lunch back home uneatened for years now. I always hoped he would eat something. He sometimes would eat the candy and I know he threw away some of it. Michael said he had the same trouble in school when he was a kid and would go outside and eat. Alex can't do that, not old enough so we are going to try to get with the priniciple and see if there is a quiet place he can sit and eat his lunch. I worry about him going all day with no lunch. He needs his energy and I don't want him to be hungry. :( We are even suppose to supply him with a healthy snack for later in the day. We have been sending grapes this week. Going to have to go buy him something else tomorrow. Running out of grapes. Not sure you needed to know that, but I am weird right now.

I hope you got home and rested some. I am going to bed early tonight, one way or another. I'm so tired.

love Deb. :)

Date: 2012-08-16 03:40 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Continuing on from badly_knitted reply: Next part:

I am now unsure as to whether we are going to see the Nashville doctor or not. We really don't have the money and they will probably try all these same kind of treatments and it will cost more money to see him + the drive + medications. I would love to talk to someone that really understood it though. He maybe could take a biopsy and see if there is an over growth of nerves that shouldn't have happened. They have done surgeries on women and removed them and then they were fine again. They could have sex again and even had kids. This was on the 20/20 show I watched online....but there are always risks, what if the surgery didn't fix me?...very expensive loss and I am sure I would go into a deep depression. I would need a lot of help and support. It may not be that at all, if it is nerve damage instead like we first thought, then if I can stay on meds that keep me out of pain, I can just wait it out even though it may take years to heal. It is not like I haven't practically been on some kind of pill for my depression/mood disorder about my whole life anyway! 0_O

If the rash crap would just stop, I would do what other women seem to be doing at this stage. A combination therapy to make life better and less pain. The pills + topical stuff (used safely, not too much) + relaxation techniques like the crystals you sent me. :D + deep breathing and if necessary really do go and find a certified China man or woman that knows acupunture! lol! I've read on the NVA. site that this seems to be how women are coping with it until more research is done and I hope a cure found one day...Actually since we are all different, I would like to know what is causing this to happen to so many of us. Maybe I will find out in my lifetime, but I don't think they have been researching VVS. for very long, maybe since the mid to late 1900's? I need to look that up. I saw something online talking about 1994 (I think?) and wondered if any one was doing anything before then about it. Like I said, some Dr.'s didn't used to even believe it was real. I can't imagine women in the 1800 and 1900's going through this hell alone with no relief especially when a really bad pain day would hit. I bet there have been some unexplained suicides from it though that is just my mind wondering. I'm a whimp anyway! lol! I hate any kind of pain and this is the worst I have ever had to deal with + the emotional stress that goes with it.

Again I should have wrote this up on my LJ, not here. Sorry. It is so hard to sit and type anywhere even on my bed. I really need to buy that donut pillow or one of those blow up rubber kind like they play with at the pool. lol! Take the touch and pressure off my poor bits. *rolls eyes*

How are you doing?...and how is Misty doing?

Sorry this was so long.

Love Deb.

Date: 2012-08-17 11:18 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
Thanks Jean,

So sweet of you to want to fix it. Doesn't seem to be anyone who can right now. Not sure if I told you that I cancelled the appointment "for now" with the specialist in Nashville. Probably would have had to anyway since my period is about to start, if we go we would need to move it up a week. I am going to talk to Michael about us talking to them again though. If it would be worth the trip to go if I can't take any oral treatments. If he could do a biopsy to see if it is an overgrowth of nerves then it would be worth it, if they thought remove the overgrowth might cure me or at least improve my condition quite a lot. What scares me is I only know of the 3 cases that it worked well on from TV, from that Dr. in Washington DC. One girl is completely normal now who had the nerves removed. I just don't know if it works for all cases and is there a way they can tell that it is the problem "before" they operate because if it isn't then we would be wasting our time and our money and quite frankly my hope/sanity. This is like a bad dream I can't wakeup from.

I'm so sorry to be like this.

You poor thing hitting your head twice, trying to get that blasted rabbit to and from the vet. LOL! I'm glad he is doing so well. :D ...but I feel awaful for your head. I hope otherwise you are still ok.

love ya!
Deb.

Date: 2012-08-17 11:49 pm (UTC)
From: [identity profile] debmommy22.livejournal.com
Oh, I thought it was about 1:30 a.m. your time. They change are clocks twice a year and I can't keep up with when you might still be awake. lol! It's 7:42 p.m. here.

I'm sorry about the migraine, like you needed that!

LOL! About you falling asleep and the lottery thing!...So funny you mentioned that. Michael has a great joke about winning the lottery. Some man was talking to God about how hard he had tried to be a good man and do the right things, so why is it he can never win. God said to him, "Buy a ticket!" In other words if I don't keep buying my tickets, going to each of these doctors, God can't help me win. So we have been buying tickets...everywhere, I tell you though, they are getting expensive. lol! It would be worth it to win though. I just hope my odds are higher than people who actually do play those money lotteries. The odds of winning is just ridiculous!

Sleep well!

love,
Deb.

Date: 2012-08-22 04:55 am (UTC)
From: [identity profile] debmommy22.livejournal.com
Thank you!
And thanks for the crystals.

love deb.

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